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Treating Infantile Spasms: A Personal Perspective

Treating Infantile Spasms: A Personal Perspective 1

Discovering Infantile Spasms

I will never forget the day my child was diagnosed with infantile spasms. It was a shock to our family, and we felt lost and unsure. But we knew we had to find the best treatment for our little one. For a comprehensive educational experience, visit this carefully selected external resource. Inside, you’ll uncover extra and pertinent details on the topic. Learn more with this related document, give it a look!

Conventional Medications

Our doctor told us about the usual medications for infantile spasms. We tried adrenocorticotropic hormone (ACTH) and vigabatrin. They helped with the seizures, but they also had some side effects. It was hard to decide what to do, but we had to do what was best for our child.

Exploring Alternative Therapies

We didn’t like the side effects of the regular medications, so we looked for other treatments. We found out about the benefits of a ketogenic diet and CBD oil for managing seizures. We were surprised that these treatments worked for some children. Even though we were not sure about trying something new, we decided to give them a chance with the help of our doctor.

Support and Advocacy

Other parents and groups who know about infantile spasms helped us a lot. They shared their experiences and gave us advice. This helped us find out about resources, clinical trials, and specialists. They played a big role in helping us find the right treatment for our child.

The Road Ahead

We are still trying to find the best way to treat infantile spasms. It has been hard, but it has taught us how important it is to be strong and keep looking for help. Even though we don’t know what will happen, we are happy about the progress we’ve made and we believe things will get better.

We want to share our story to give hope to other families. You are not alone, and there is always a reason to hope. We constantly strive to offer a complete educational journey. Visit this thoughtfully chosen external site to uncover supplementary details on the topic, infantile spasms!

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Treating Infantile Spasms: A Personal Perspective 2